Discussion: View Thread

Dear Consulting Section Colleagues,
I am (pre-) announcing an initiative when I am section chair about "data privacy" . I will be looking for volunteers in 2023, preferably, all volunteers from the Section on Statistical Consulting

Link below is to AMSTAT news - and a co-authored note with Monica Johnston - due to a snafu only my name appears.

The link should open to the September 2022 AMSTAT news. IN the note I describe the background and motivation for an initiative I will organize when I am Section chair. The initiative, working title is "data privacy toolbox" and I intend for a small group of interested volunteers, preferably in the Section to help create a "toolbox" of data privacy materials.

• and highlighting a caveat emptor in the note.  I do recognize this may overlap work from other ASA committees. There is no intention to re-invent the wheel here.

Briefly I believe i have discovered a "proof of concept" for de-anonymization of patients in both crown jewel Federal databases "clinicaltrials.gov" and "SEER".

the article with my co-author Monica Johnston, titled "Finding the de-anonymization Needle in the SEER Haystack"

And this is one of my initiatives I will present and propose to the section. I will announce the other initiatives when I am officially section chair.

Thank you in advance

------------------------------
Chris Barker, Ph.D.
2022 Statistical Consulting Section
Chair-elect
Consultant and
Adjunct Associate Professor of Biostatistics
www.barkerstats.com


---
"In composition you have all the time you want to decide what to say in 15 seconds, in improvisation you have 15 seconds."
-Steve Lacy
------------------------------

In the spirit of not reinventing the wheel, we might be interested in (among many others):

• Email group Responsible Data, hosted by the Engine Room. Perhaps there are others in the Section who are in this group.
• Privacy by Design resources. Perhaps some are already involved in a related initiative.

Just an initial 0.02. There is already a lot out there on the topic, only not specifically in the statistical realm, as this is a huge data management topic (those who came to my talk at JSM will recognize data management is its own entire discipline!). Honestly, I would like to see more collaboration between statisticians/data scientists and the data management profession.

------------------------------
Michiko Wolcott
Principal Consultant
------------------------------

Original Message:
Sent: 09-07-2022 20:36
From: Chris Barker
Subject: Section-chair-elect - 2023 Data Privacy Iniitiative - for/volunteers

Dear Consulting Section Colleagues,
I am (pre-) announcing an initiative when I am section chair about "data privacy" . I will be looking for volunteers in 2023, preferably, all volunteers from the Section on Statistical Consulting

Link below is to AMSTAT news - and a co-authored note with Monica Johnston - due to a snafu only my name appears.

The link should open to the September 2022 AMSTAT news. IN the note I describe the background and motivation for an initiative I will organize when I am Section chair. The initiative, working title is "data privacy toolbox" and I intend for a small group of interested volunteers, preferably in the Section to help create a "toolbox" of data privacy materials.

• and highlighting a caveat emptor in the note.  I do recognize this may overlap work from other ASA committees. There is no intention to re-invent the wheel here.

Briefly I believe i have discovered a "proof of concept" for de-anonymization of patients in both crown jewel Federal databases "clinicaltrials.gov" and "SEER".

the article with my co-author Monica Johnston, titled "Finding the de-anonymization Needle in the SEER Haystack"

https://magazine.amstat.org/blog/2022/09/01/seerhaystack/

And this is one of my initiatives I will present and propose to the section. I will announce the other initiatives when I am officially section chair.

Thank you in advance

------------------------------
Chris Barker, Ph.D.
2022 Statistical Consulting Section
Chair-elect
Consultant and
Adjunct Associate Professor of Biostatistics
www.barkerstats.com


---
"In composition you have all the time you want to decide what to say in 15 seconds, in improvisation you have 15 seconds."
-Steve Lacy
------------------------------

Original Message:
Sent: 9/7/2022 8:37:00 PM
From: Chris Barker
Subject: Section-chair-elect - 2023 Data Privacy Iniitiative - for/volunteers

Dear Consulting Section Colleagues,
I am (pre-) announcing an initiative when I am section chair about "data privacy" . I will be looking for volunteers in 2023, preferably, all volunteers from the Section on Statistical Consulting

Link below is to AMSTAT news - and a co-authored note with Monica Johnston - due to a snafu only my name appears.

The link should open to the September 2022 AMSTAT news. IN the note I describe the background and motivation for an initiative I will organize when I am Section chair. The initiative, working title is "data privacy toolbox" and I intend for a small group of interested volunteers, preferably in the Section to help create a "toolbox" of data privacy materials.

• and highlighting a caveat emptor in the note.  I do recognize this may overlap work from other ASA committees. There is no intention to re-invent the wheel here.

Briefly I believe i have discovered a "proof of concept" for de-anonymization of patients in both crown jewel Federal databases "clinicaltrials.gov" and "SEER".

the article with my co-author Monica Johnston, titled "Finding the de-anonymization Needle in the SEER Haystack"

https://magazine.amstat.org/blog/2022/09/01/seerhaystack/

And this is one of my initiatives I will present and propose to the section. I will announce the other initiatives when I am officially section chair.

Thank you in advance

------------------------------
Chris Barker, Ph.D.
2022 Statistical Consulting Section
Chair-elect
Consultant and
Adjunct Associate Professor of Biostatistics
www.barkerstats.com


---
"In composition you have all the time you want to decide what to say in 15 seconds, in improvisation you have 15 seconds."
-Steve Lacy
------------------------------

Original Message:
Sent: 9/7/2022 8:37:00 PM
From: Chris Barker
Subject: Section-chair-elect - 2023 Data Privacy Iniitiative - for/volunteers

Dear Consulting Section Colleagues,
I am (pre-) announcing an initiative when I am section chair about "data privacy" . I will be looking for volunteers in 2023, preferably, all volunteers from the Section on Statistical Consulting

Link below is to AMSTAT news - and a co-authored note with Monica Johnston - due to a snafu only my name appears.

The link should open to the September 2022 AMSTAT news. IN the note I describe the background and motivation for an initiative I will organize when I am Section chair. The initiative, working title is "data privacy toolbox" and I intend for a small group of interested volunteers, preferably in the Section to help create a "toolbox" of data privacy materials.

• and highlighting a caveat emptor in the note.  I do recognize this may overlap work from other ASA committees. There is no intention to re-invent the wheel here.

Briefly I believe i have discovered a "proof of concept" for de-anonymization of patients in both crown jewel Federal databases "clinicaltrials.gov" and "SEER".

the article with my co-author Monica Johnston, titled "Finding the de-anonymization Needle in the SEER Haystack"

https://magazine.amstat.org/blog/2022/09/01/seerhaystack/

And this is one of my initiatives I will present and propose to the section. I will announce the other initiatives when I am officially section chair.

Thank you in advance

------------------------------
Chris Barker, Ph.D.
2022 Statistical Consulting Section
Chair-elect
Consultant and
Adjunct Associate Professor of Biostatistics
www.barkerstats.com


---
"In composition you have all the time you want to decide what to say in 15 seconds, in improvisation you have 15 seconds."
-Steve Lacy
------------------------------