One thing that's not statistical but should be considered is avoidance of things that waste time. Here are some HIPA examples:
Doctors won't email me or let me email them, because email is "not secure", but they are perfectly happy to fax things even though most of us use fax machines that are shared with co-workers.
I need to sign an authorization permitting my doctor to give me copies of my medical records.
Many government offices will let you fax things to them but won't let you email things. Social Security discards records so fixing mistakes often means start from scratch.
Social Security Supplemental Security Income, Social Security Disability, and Division of Developmental Disabilities don't share information with each other so one has to start from scratch with each one.
Always think about the Law of Unexpected Consequences.
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Emil M Friedman, PhD
emilfriedman@gmail.comhttp://www.statisticalconsulting.org
Original Message:
Sent: 10-27-2016 10:37
From: Amy Nussbaum
Subject: Privacy and Confidentiality
Hi members! The ASA has been asked for input on the National Privacy Research Strategy… specifically, which research areas outlined in the document would be the most promising for collaboration between statisticians and security/privacy researchers. Here are the topics:
- Foster multidisciplinary approach to privacy research and solutions;
- Understand and measure privacy desires and impacts;
- Develop system design methods that incorporate privacy desires, requirements, and controls;
- Increase transparency of data collection, sharing, use, and retention;
- Assure that information flows and use are consistent with privacy rules;
- Develop approaches for remediation and recovery; and
- Reduce privacy risks of analytical algorithms.
Some proposed topics include record linkage, data dissemination strategies, data access protocols, input and integration, more research on evaluating sensitive variables in administrative and survey data, and collection and use of essential versus auxiliary information. What are your thoughts? Does anyone know of any statisticians active in these areas of research? Are there any topics not listed that should be considered? Let us know by replying here or emailing me at nussbaum@amstat.org. Thanks!
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Amy Nussbaum
Science Policy Fellow
American Statistical Association
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